It seems the days are slipping by so not able to update every day.
Oliver had a good day Friday and yesterday, he gets another dose of his 2 chemo drugs today and then just one dose tomorrow and Tuesday. He got a unit of platelets overnight Friday/Saturday which raised his platelet count to 180K -the most he has ever been in his life even with other platelet transfusions. All his blood results are kept a close eye on and he has blood taken every day.
So far he has tolerated the drugs quite well although we know that he will probably still get ill after the chemo has finished. He has vomited once but I think thats due to too many sweets! After his magic cells or 'red gold' as my fellow WAS mum Susan calls it, on Thursday, he will begin anti-viral, anti-fungal, anti-biotics and anti-rejection drugs which he will have to stay on for a while.
Dave and I are taking it in shifts and we now have a single one bed flat so we can interchange who stays over with Oliver. I stayed in the hospital last night and it is very tiring as there is always someome coming in and out the room. Oliver is also having night feeds via his NG tube of High Calorie Milk. This is both to give him a boost calorie wise and to maintain his fluid levels as his is not drinking enough. We need to keep on top of his fluid levels to help flush his kidneys out because the chemo can be very hard on their kidneys.
Anyway, thats the news to date
Will try to keep updating
love to all
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This Blog is to share the journey of our Son Oliver living with Wiskott Aldrich Syndrome and his subsequent Treatment and Bone Marrow Transplant
Oliver at 5 months
3 comments:
Hi Dave/Deb & Oliver, glad to hear all is well with the chemo sessions and Oli is doing ok. I'm watching the blog daily and it was good to talk today Deb, you sounded quite upbeat,if a little tired, so I know he's ok. Will keep messaging through the blog and as always send all our love and big kisses to Oliver. The SLOTS are awaiting his return! Aunty Sue & Uncle Geoff at the seaside. xxxxx
Hi Debbie, Dave and our little friend Oliver, its wonderful to hear Oliver is doing well (all things considered) Please give yourselves a big cuddle from all of us, we are missing you so much.
Stay focused and positive, its going to be tough, but that day is coming when Oliver can play outside in the fresh air with the girls on a trampoline, bouncing up and down like a Tigger! Always in our thoughts day and night.Love Tracey, Richard, Gigi, Pips and Olivia XXXXX
Dave, Debbie, and OLIVER.
Glad to hear that things are goign as well as expected. We are just back of Hols and it is our first chance to catch up. Keep the updates coming it is lovely to read them and know how things are.
Our thoughts are with the THREE of you. Take Care. James and Zuleika x
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