Didn't have time to update yesterday. Nothing happened really during the day, apart from Oliver still not wanting to eat and having milk feeds via his NG Tube. He was still having stomach cramps but a dose of codiene last night helped to settle him.
His counts remained flat yesterday with platelets at 44K and no rise in his white blood cell count.
One thing that DID start to happen last night is that his hair has started to fall out bless him. I was really upset at first but Dave pointed out that its an indicator the chemo has done its job.
Today his Haemoglobin is below the threshold - 7.3 (the threshold is 8) and his platelets have dropped to 30 so he is going to have some platelets and red blood today.
However, his white blood cell count has gone from 0.03 yesterday to 0.10 today. Hoping this is the start of a rise.
He is currently asleep with yet another milk feed going in - we keep telling him if he tries to eat something he won't have to have the milk feed but he doesn't feel like it so we are going to have to take this slowly.
We have started putting his hair in a little bag at his request - he has started pulling it out himself - which is quite funny to watch and then he sprinkles it into the bag!
Thanks again for all the messages of support - it means so much to us to know you are all pulling for him.
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This Blog is to share the journey of our Son Oliver living with Wiskott Aldrich Syndrome and his subsequent Treatment and Bone Marrow Transplant
Oliver at 5 months
3 comments:
Dear Debbie Dave and our little friend Oliver,
Bless him, I bet hes wearing that very cheeky smile when hes pulling and putting his hair into the bag. He is such a brave little boy. The white blood cells count are encouraging news, lets hope this is the begining!
Miss you all very much, Love Tracey Richard Gigi Pips and Oliviaxxxxx
Hi to everyone, yes the Chemo has worked. Connor started to lose his hair around 2 weeks post transplant and he did exactly what Oliver is doing! Good news on the white count, hope that continues on an upward trend now. Ok, he's having some platlets but it's early days Deb and things will improve. He's not the best eater in the world, so don't worry, he'll let you know when he's ready. Fluids are what is important for now and he's having his milk etc. His tummy cramps are probably wind and will resolve once he starts on the solid stuff again. It would be good to get a boy toy that you can pull hair from! Perhaps Dave will volunteer, he's on his way anyway!! Would volunteer Geoff but he's already there. LOL. Ok, keep chin up and look to the future. Catch up on next blog. Love you all. Sue & Geoff xxxxxx For Oliver XXXXXXXXXX
Hi Tracey and Sue. Thanks so much for following Olivers progress. His hair is still falling out it theres hair literally EVERYWHERE! Sue can you give me any addresses for Agencys etc that Geoff has worked for off shore, we have met a maltese guy who wants to look into working off shore. Ta!
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