Well we are half way through D +6 and I hesitate to say (touching all the wood I can find!) that its not been too bad so far! Oliver has still got that awful rash and he has been scratching it so we need to keep an eye on it so it doesn't get infected. He has eaten a little more this morning, and asked for a drink of water which is all good.
He had a platelet transfusion overnight which has taken his platelet count up to 160K which should last him for several days.
He is asleep now and having his IV Aciclovir which takes about an hour so we have taken the opportunity of putting some water through his NG Tube to give his fluids a boost.
The doctors have been round and they are pleased with his progress so far.
I can't quite believe that we are 7 days post transplant tomorrow, it seems like we waited so long for it and now its been and gone in a flash.
Will update tom.
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This Blog is to share the journey of our Son Oliver living with Wiskott Aldrich Syndrome and his subsequent Treatment and Bone Marrow Transplant
Oliver at 5 months
1 comment:
Hello Debs, Dave and Oliver, Have they given him anything for the rash? It's so hard when something itches, you just have to scratch! Just got to check nothing gets infected. Geoff can't get on the blog offshore so he is checking in every night with me for updates. Pleased to see Olivers appetite has resurfaced a little. A whole week gone already, if they all go this quick, you'll be home in no time. Love to all hugs for Oliver xxxxxxxx Sue & Geoff
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