Not a lot to report today really - not sure if thats good news?!!
Oliver continues not to eat much so is on night feeds and fluids to keep him topped up. His platelet count has dropped so they are probably going to give him another platelet transfusion tomorrow. This will continue until he starts making his own (which will be a VERY happy day!)
Can you also believe we have been asked to vacate our accommodation as someone elses need is greater than ours. mm we come from 150 miles away, Im 25 weeks pregnant, our son is in hospital for a long term stay for a monumental procedure.....? I am now expected to go back to sharing a room with another mother. Ive said that this is completely out of the question as how do I know that other person has not got a virus? Oliver has NO defences whatsoever at the moment and I will not take the risk of compromising him no way! Yes we go out in public but thats not the same as sharing a room and breathing the same air as someone in a confined space overnight. We have to go back to accommodation in a hour to see if they can sort us something out. It seems so unfair to give us something and then take it away, so watch this space. As if you have not got enough to worry about!
Anyway the focus remains on Oliver and we continue to remain positive and are willing those cells to do their job.
Oliver continues not to eat much so is on night feeds and fluids to keep him topped up. His platelet count has dropped so they are probably going to give him another platelet transfusion tomorrow. This will continue until he starts making his own (which will be a VERY happy day!)
Can you also believe we have been asked to vacate our accommodation as someone elses need is greater than ours. mm we come from 150 miles away, Im 25 weeks pregnant, our son is in hospital for a long term stay for a monumental procedure.....? I am now expected to go back to sharing a room with another mother. Ive said that this is completely out of the question as how do I know that other person has not got a virus? Oliver has NO defences whatsoever at the moment and I will not take the risk of compromising him no way! Yes we go out in public but thats not the same as sharing a room and breathing the same air as someone in a confined space overnight. We have to go back to accommodation in a hour to see if they can sort us something out. It seems so unfair to give us something and then take it away, so watch this space. As if you have not got enough to worry about!
Anyway the focus remains on Oliver and we continue to remain positive and are willing those cells to do their job.
2 comments:
Hi All, understand your predicament totally Deb but guess the other parent would be feeling the same as you. Their child is also in there for probably life threatening treatment. Nicola had to jostle around a little as a little girl with terminal condition was admitted to Bristol and they shared their accommodtion for a couple of days whilst things got sorted. Clearly accommodation is at a premium in these situations, so, I guess they do the best they can and now it has been sorted. The picture of Oliver is a lovely one and he looks a cheerful chappy, although he's not eating much, clearly they've got that covered with the feeds & fluids. The platlet situation will be another milestone achieved and I would think that he will be making his own during the next few days or so. Keep positive and remember there is a solution to everything, so keep your stress levels down Deb as you have your new bubba to think about too. Love to all and a big smackaroony to Oliver from Aunti Sue and Uncle Geoff xxxxxxxxx
Debbie! You are 25 weeks pregnant?? Congratulations! I'm so glad to read how well Oliver is doing.
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