Well, Oliver is now in Sheffield Childrens hospital. His tummy problems continued until he was down to eating and drinking nothing and was in utter agony.
We took him in and now he is nil by mouth, has been on morphine and we are trying to get to the bottom of what is wrong. He has had two x-rays, and an ultrasound. The first x-ray showed distension in his bowel but nothing else and the 2nd one has shown some improvement. The ultrasound also shows no abnormalities.
We are therefore at a loss as to what is wrong, lots of conflicting opinions, GVHD of the gut, a bug, or that the chemo has stripped his GI tract of its lining and natural flora and has therefore become very sluggish.
He is also now on a new drug to try and help with his tummy. A good sign is that he is asking for food however he continues to wretch when he has any more than about 20ml of fluid in his tummy.
Some good news which has been rather overshadowed by all this is that his platelet count is now 223K!!! Thats well into the normal range and its what we have been wanting an praying for so long, its such a shame that this set back has clouded it. His blood count as a whole is good. HB quite low but not surprising really as he has not eaten anything in about 4 days.
The docs want him to try a little bit of food tomorrow, but if he can't tolerate it, he will have to go on TPN. This is something we ran from in GOSH but at the moment if things continue we have no alternative he needs proper nutrition from somewhere.
Please join us in hoping and praying that he will tolerate some food tomorrow and begin to get better. Hes been through so much, he deserves some respite from hospital life and just to start being a little boy again. Its so hard not to break down and cry but keep trying to be strong for Oliver and our new baby Im carrying.
Will update when I can
D
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This Blog is to share the journey of our Son Oliver living with Wiskott Aldrich Syndrome and his subsequent Treatment and Bone Marrow Transplant
Oliver at 5 months
4 comments:
Our thoughts are with you as always, fantanstic news about Olivers platelets, but sad that he's had to go back in for other reasons. Really really hope he gets better soon - he always loved his food!
All our love to you all,
The Milburns
xxx
Dear Debbie, Dave and our very brave little friend Oliver,
What fantastic news about his platelet count, but just so sad he is in hospital yet again.
Hoping and praying is tries to tolerate some food, the girls are so desparate to be with him.
keep faith and be strong, i'm sure you'll be home soon for good.
Always in our thoughts and prayers,
love Tracey Richard Olivia, Gigi and Philippa. XXXXX
Hi, our thoughts are with you chick and hope Oliver starts eating something, be strong and look after baby bump, lots of love Sharon & Brown family x x (Michelle & Louise's friend and yours too chick )
Hi Wootties, Wondered why we hadn't been able to get in touch with you. Phoned often but no reply. So, we have a setback, which has overshadowed the wonderful progress been made with the transplant. Platlets are excellent and we just need to bulldoze the crap to get Oliver back on track with his eating. At least he wants to eat, which is another progression. At least there are no abnormalities, which is good and if TPN is the last resort whilst this problem is resolved then so be it. Everything crossed that he eats something on Sunday to start the ball rolling. Will keep in touch through Linda and the blog. Love you all. Big hugs for Oliver from Aunti Sue and Uncle Geoff xxxxxxxxxxx
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