Oh my goodness, I can't believe I haven't updated with our important news - we are home!
Oliver continues to have tummy problems and has not eaten anything for the 2nd day because he has not been to the toilet again since Sunday. We are keeping everything crossed that its like the doctors at GOSH said his gut needs time t0 get better from the chemo.
We continue to strive to get his 1300 ml of fluids in him and the gravity feeding tubes are a god send or we would never do it.
We have found another family whos son is affected by WAS a few miles away in Newark and we hope that we can share this journey with them too.
I will continue to update with Olivers progress. The community nurse has been in today to take his blood for cyclosporin levels and a FBC so hoping that his platelets come up or stayed the same.
Just found out that although the local hospital has agreed to do his immunoglobulin there, none of the nurses are trained in central lines so this will have to be addressed. However Sheffield Childrens hospital have agreed to take some of his care on so we will probably be able to have it done there.
Anyway, signing off for now - thanks for your supportxx
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3 comments:
Hi Debbie, Dave and our little friend Oliver,
My word it's great to have you all back home, the girls can't wait to play with him on the back garden and hopefully encourage him to eat and drink.
We know you still have a long way to go with Olivers Journey, but please remember we are here to help.
God Bless, Love Tracey, Richard, Olivia, Gigi and Philippa. XXXXX
Hello Family Wootton, welcome home Oliver. Great to be back on home terriroty. Things will hopefully start to settle down over the next couple of weeks and his eating will get back on track Deb. Once you have all the health professionals in place you will feel much more settled Deb, I'm sure. Will give you the weekend to settle in as you now need to de institutionalise! Will ring early next week. Geoff back in Israel now but will update him on the great news! Love Sue & Geoff xxxx Oliver XXXXX
I was so happy to read the good news about his engraftment. I hope his eating improves.
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