My I have been slack again at updating.
The good news is that Olivers counts continue to rise and yesterday his platelet count was 79K and today 69K -which is around the same (the margin for miscounting is around 10) - this means that he has started making platelets for the first time in his life which is amazing. It is not a normal count (normal is 140K to 300K) but a safe range and you can even have an op at 50K. His white blood cell counts also continue to rise which will help to protect him from infection. We were also elated to learn that Oliver has got 100% engraftment of donor cells so hopefully now the marrow will keep growing and working.
Not so good is that Oliver is still not eating properly and his really constipated. He is also losing weight so we will not be allowed to go home until he has a pooh and starts eating. Easier said than done with a stubborn, scared 3 year old. Bless him we are expecting such a lot of him when his little body has been through so much.
The staff here are great but it now feels like living in a fish bowl and sometimes you just want to scream leave me alone!!!!!
Our continuing thanks for all the support and messages of support we are getting and also your cards and presents. We feel very lucky to have such wonderful friends and family
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This Blog is to share the journey of our Son Oliver living with Wiskott Aldrich Syndrome and his subsequent Treatment and Bone Marrow Transplant
Oliver at 5 months
5 comments:
Dear Debbie, Dave and Oliver,
As I have said before this is truly amazing, fabulous and wonderful news - all yours prayers and wishes are coming true!
Now our fingers are crossed for a pooh!!
Hope to hear from you soon and hopefully give you a hug, you have come so far it is a amazing what GOSH have done for Oliver, we are so grateful too for making our very special little friend better.
Love to you all, you are in our constant thoughts and prayers, god bless
Tracey Richard Olivia Gigi and Pips
xxxxx
Hi honey
Amazing news as always, Oliver is doing so well & is such a brave little chap. Harrison is so excited about Oliver coming home soon & can't wait until they can have a proper play together when he is able. I miss you so much babes & can't wait to see you again when you eventually 'get released!!' Here's hoping Mr O has an explosion sometime soon!!
Big hugs & love to you all as always,
Louise, Dirk & Harrison xxxx
Hi Deb, Dave & Oliver, Good news comes in bucket loads and hopefully so will Poo! I am sure he will resume his old eating habits when he gets home. I have never known anyone to gain weight in hospital! Great news on the engraftment and he's on the up with the platlets. Huge and amazing achievements, considering 3 months ago! Keep the faith, hold in there your on your way home. Love to you and big hugs for Oliver. Aunti Sue & Uncle Geoff xxxx Bump xx
Great to catch up with Dave last week, and drink your coffee.
Can't wait for you all to come home, the street hasn't been the same without seeing Dave walking past our house to the pea park, with Oliver cheekily trailing behind!
Great news on engraftment little fella! now you need to do a big man pooh!
Love to you all. Shaun, Lisa, Finley and Sonny.
so glad all is going so well xxxx i put that info you wanted on facebook debs let me know if you get it alison xxxxxx
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