We are now on Day 36 and Im pleased to say at last Oliver has had a pooh and we are looking to going home once he can come off IV fluids!!!!!!!!! We have to have a last MOT re viruses and bacterial infections before we can go and of course step up his fluids as he cannot go home on IV fluids.
Its extremely hard to get a 3 year old to drink 1300 ml of fluids a day!
He has eaten a little more today and is no longer disgusted at the thought of food - bless him he must have been so bunged up.
His platelets today are 90K which is fantastic news - this is hopefully going towards a 'normal' count which would make all our dreams come true.
The photo was taken today with him looking a lot happier than he has in days, which in turn makes us happy.
We still have a long way to go when we do eventually go home but its another huge step in the final 'cure' for Olivers Wiskott Aldrich Syndrome.
I will never forget how hard this has been on all of us but in turn I will never forget what GOSH and Olivers donor have done for us, its nothing short of a miracle.
4 comments:
Hi Little Fella, you belong to the BPC (big poo club)now and you must feel so much better. The seaside awaits your return and the slots are eagerly awaiting your pennies. Uncle Geoff is saving his pennies for you and we can't wait to get some Norfolk sunshine on you. Love & Kisses from Uncle Geoff and Auntie Sue xxxxxx
Lovely picture Deb. Fantastic news that Oliver was allowed outside to play, it's so easy for us all at home to take little things for granted that he's not had the pleasure of for the last 8 weeks. Looking forward to you all coming home soon, and our next night out at Springwater.
All our love
Shaun, Lisa, Finley and Sonny
Dear Debbie, Dave, Carol and our brave little friend Oliver,
What wonderful news, its what we've all been waiting for.
Gigi says you must drink up for Mummy Oliver, because then you can come home and Gigi can feed you again!
I'm sure you enjoyed your little adventure outside and you have a wonderful safe garden just waiting for you at home, so please drink up and eat up, so all the Doctors and nurses can wave goodbye and we can say hello again. When this happens we would like to thank everybody at GOSH and that very special donor that have made it possible for all your dreams come true.
We eagarly await your safe return,
God Bless and Godspeed your journey soon.
Lots of love hugs and kisses
Gigi, Tracey, Richard, Olivia and Philippa. XXXXX
Have a good journey back Oliver. Hope you and your mum and dad can get some rest now you're out of here. We'll miss you in the playroom.
Cheers,
Dylan, Susan and Dave.
P.S: Dylan's continuing news from Fox Ward is at http://www.dylantonge.com/bmt
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