Hi
Just got back from spending 2 days at Great Ormond Street Hospital and going through a round of pre-BMT tests. All is good and Oliver is fit and well apart from the symptoms of his WAS. We are still aiming to be admitted on the 27th April and his conditioning (Chemo) will start 2 days later. All still very scary but we had a look around the unit and the cubicles are a lot nicer than I imagined.
We were told that we could not wish for a better donor (apart from a sibling) we have a young, 21 year old male who is CMV negative which is compatible with Oliver.
Oliver will be on a slightly reduced intensity chemotherapy regimen but even so we are under no illusion that it will probably make him ill.
My pregnancy is still going well and we had a 20 week scan which confirmed all is well with the anatomy of the baby so now we know he has not got WAS, no chromosonal defects and low risk for spina bifida - this is great news.
Obviously we are now keen to get Oliver transplanted and home although we are aware that its not an exact science we are hoping he is mr average and we will be home in around 8 weeks.
Will keep you posted
Signing off for now
Deb
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1 comment:
great news debbie. so glad your so near now hope all goes well and will keep looking on here. great news about the new baby too. all our love to all of you xxxxx
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