We are now on our 2nd day at Great Ormond Street. Oliver was admitted yesterday and we have settled in as much as we can.
He had a canula put in his arm yesterday much to his dismay in readiness for his platelet transfusion this morning and for some blood tests. He had his platelets at 7am and went down to theatre to have his Central or Hickman line put in to enable bloods to be taken easily and for drugs to be administered without the need for any more canulas or needles. He has also had an NG (Naso-gastric) tube put in to help us ensure he gets the correct nutrition should he stop eating and also to ensure he gets enough fluid. This is because the chemotherapy drugs he will be receiving over the next week will put a strain on his kidneys so the more fluid he receives the better. The NG tube will also assist in giving him the oral medication which does not taste very good as it will bypass his tastebuds and go into his stomach.
All went well in theatre, although I cried my eyes out when he went to sleep - when he came round all was as it should be and both tubes were in successfully.
He is off his food, which I think I would be and he doesn't particularly like the NG tube but Im sure we can overcome this.
He never ceases to make me proud of how well he tolerates all he has to go through. We are trying to keep strong and positive although the next few weeks are going to be tough all we can do is help him through it as much as we can with our support and love. I know that friends and familys thoughts are with us and we thank you for all your messages of love and best wishes.
I will try to keep this blog as updated as I can
He had a canula put in his arm yesterday much to his dismay in readiness for his platelet transfusion this morning and for some blood tests. He had his platelets at 7am and went down to theatre to have his Central or Hickman line put in to enable bloods to be taken easily and for drugs to be administered without the need for any more canulas or needles. He has also had an NG (Naso-gastric) tube put in to help us ensure he gets the correct nutrition should he stop eating and also to ensure he gets enough fluid. This is because the chemotherapy drugs he will be receiving over the next week will put a strain on his kidneys so the more fluid he receives the better. The NG tube will also assist in giving him the oral medication which does not taste very good as it will bypass his tastebuds and go into his stomach.
All went well in theatre, although I cried my eyes out when he went to sleep - when he came round all was as it should be and both tubes were in successfully.
He is off his food, which I think I would be and he doesn't particularly like the NG tube but Im sure we can overcome this.
He never ceases to make me proud of how well he tolerates all he has to go through. We are trying to keep strong and positive although the next few weeks are going to be tough all we can do is help him through it as much as we can with our support and love. I know that friends and familys thoughts are with us and we thank you for all your messages of love and best wishes.
I will try to keep this blog as updated as I can
6 comments:
Hello Dave, Deb and Oliver
Good to see all is going as should be. It's always hard to see your precious little one go through so much but keep focused on how much better things will be after the transplant. Our thoughts and love are with you all, big kisses for Oli. Reading blog daily. Love Sue & Geoff xxx
Hello to you all and especially to our wonderful little friend Oliver, missing you so much, your nanna shown your photo to us, you look such a big boy in you very own chair, and how special are you to have a room all to yourself? We shall be sending you something soon using specail delivery with Postman Pat. Lots of love Gigi Philippa Olivia Tracey and Richard
hello to all of you. great to hear all is going well so far. Oliver is such a brave little boy and you are right to be so proud of him. I was so greatful for your support when we in kingsmill with lily and i can only send you the same love and support back. will cheak blog daily. all our love Alison, Richard, Bethany, Emily and Lily xxxx
Thanks Sue, Geoff and Tracey.
Will pass on your love to Dave and especially Oliver.
Oliver misses the girls like crazy and so do I! He has told all the nurses that his girlfriends called GiGi!
Hi Alison - Thanks for your kind words, we supported each other in Kings mill so thanks to you to and for your continued support, it means a lot to know people back home care.
Dx
Morning Deb, Dave and Oliver
Today is the day we have all been waiting for. We are so proud of all of you especially Oliver. You have all been so strong, and from now the only way is UP. I shall be coming on Monday with more goodies. Can't wait to see you all Please give Oliver a big kiss from Nanna and Grandad. Love you all so very much Love Mum and Dad xxx
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