D +176

Olivers Hickman line was successfully removed on Wednesday last week, he was a bit hysterical when he came out of the anaesthetic as he had a canula in the back of his hand,but he soon calmed down. We have to now have his immunoglobulin via a canula which should be fun but better than the constant threat of infection with the Hickman line.

He continues to be well and he is full of energy but his behaviour is taking a downward turn he is just so fed up of being cooped up in the house. GOSH have said he can go swimming at quiet times which is another huge step forward. They have also said he should be able to start nursery in January which is great news for us all particularly Oliver. We have got an inclusion support worker who will liaise with the school to ensure they give him his medication and inform us of any illnesses in school, in particular, Chickenpox as this is still quite serious for Oliver whilst his immune system is reconstituting.

Our next appointment at GOSH is on the 27th January and we are hoping at that point we can go to 6 monthly appointments, but I suspect it will stay at 3 monthly for a while. We will always be in the debt of GOSH who have played a very important part in saving Olivers life. We intend to apply to the Anthony Nolan Trust after 2 years to meet Olivers donor, this is of course his decision. What do you say to the person who has saved your sons life? Thank you seems so inadequate. He will be 23 years old by then and Oliver will be 5 1/2. Mind blowing.

Will continue to update when possible - very busy at moment with a caged 4 year old and a 2 month old - who continues to be a joy.

Bye for now